I have been complaining about pain for as long as I can remember.
When I was in seventh grade, I started seeing a rheumotologist who looked at my family history and my symptoms and started treating me for arthritis. I was put on methotrexate injections and various other pain killers. These worked for a while and I even felt pain-free some days, but eventually, they stopped working and my pain and stiffness started to increase. Sometimes specific fabrics were too much for me. I would have to change halfway through the day because my legs felt like they were on fire from my jeans. I’m not saying I was feeling warm. It felt like the pins and needles sensation you get when your foot falls asleep and is trying to wake back up.
Because we found that my pain wasn’t better anymore, we went to a new doctor in January of this year. That doctor assessed me and diagnosed me with fibromyalgia and hypermobility. “Great,” I thought. “More pain disorders.” I had wished that it would be something they could fix. I didn’t want a chronic illness to be the answer.
Life with fibromyalgia is complicated and painful. One minute, you feel fine. The next minute, you have an intense pain in one part of your body or all over. Sometimes a hand on your shoulder is so painful that you flinch. A blanket over you can feel like being stepped on my an elephant.
Explaining your illness to friends and loved ones can be a complete nightmare. “This hurts me even though it really shouldn’t,” ends up sounding like, “I’m whiny and I want medication,” to them. They don’t understand, because they aren’t dealing with this illness on a daily basis. Trying to tell them that sometimes them touching your arm hurts and sometimes it doesn’t makes it sounds made up to them. I have had this problem in my own life when trying to explain to my boyfriend that yes – his hand on my leg didn’t hurt me a minute ago, but now it feels like needles.