When you are sick with fibromyalgia, it seems as if a part of you leaves to never return again. Remember how you were before and that sometimes makes you fall into a well that is quite difficult to get out of. They can be diseases that are obvious in the eyes of others, or as in the case of Fibromyalgia, your interior may be destroying little by little and that is not perceptible to the naked eye, taking this to a void in which incomprehension and your own limitations take over you day after day. Taking you to a state of total disability.
This May has been the International Day of Fibromyalgia, it is a chronic disease that mainly produces restless sleep, extreme tiredness and diffuse musculoskeletal pain. Although really, fibromyalgia has more than a hundred symptoms.
Today it affects 5% of the population, mostly women.
It is not yet known exactly what produces it, nor is there a cure; What is clear is the level of disability that occurs in the lives of those affected, something that unfortunately, does not seem to be taken into account in current times.
Activities such as making the bed are the most painful, something as necessary as having fun, whether dancing or simply laughing, leads to extreme fatigue that produces tachycardia and shortness of breath. Playing with your children or running after them becomes impossible.
Your life changes completely, you stop being who you were to become someone incapable of leading a normal life.
The lack of restful sleep affects your mind very negatively, producing gaps, lack of reflexes, thinking clearly and even lack of coordination. It has been shown that fibromyalgia patients do not maintain a linear REM phase while they sleep, but that there are altered peaks that prevent them from being able to have a deep sleep. It’s as if you did not sleep.
The phrase “it hurts everything” is repeated daily in the life of the patient with fibromyalgia.
The fight begins when you get out of bed every morning, with extreme tiredness, rigidity takes over your body, your first minute of the day is really exhausting. Once you overcome it, it is possible that the energy lasts only a couple of hours, and after this, you are exhausted again, as if you ended an intensive day with guard included.
The threshold of pain is so low, that a simple caress or hug makes your skin burn, making physical contact especially complicated.
Everything hurts, sometimes even your nails or hair. The pains only seem to reduce at rest, but you can not afford to stay all day in bed, so you prefer to fight against it and lead a normal life, although this negatively affects your health creating new outbreaks due to your high demand .
You feel tired, you feel sore, helpless, useless.
All this leads to a deep depression of which antidepressants do not help you out, the only way to overcome it would be to stop thinking about it, but unfortunately it is impossible, you have to work to eat, to pay your house and to maintain your children, and every effort, however minimal, reminds you of your limitations.
People do not understand you, you have an invisible disease, you can not see it, but you carry it inside. And the worst is not the lack of understanding, the worst is that they question what you feel. After spending a few years as a doctor until finally you are diagnosed with fibromyalgia, you have to confront them not to believe you, to be called vague, to be told that you are the victim; Not only do they not help you, but they sink you deeper into the mud.
The medication does not help much, they only manage to stun you more, and that if you are lucky not to be affected by the side effects. They recommend physical exercise, within your limitations, of course. You may be able to stretch for five minutes, and then not be able to get off the couch for two days.
You can not work, or take care of your house, or your family. But you can not have an acceptable quality of life either, because although fibromyalgia is a chronic disease and causes disability, it is not really recognized when applying for a disability. Yes, it is, it is a real disease, but apparently for some it is not, something that is somewhat humiliating.
Few people have managed to be heard, but not before being forced to present their case before a judge, exhausting all their savings in lawyers and forensics, and then obtaining a minimum pension. But if fibromyalgia affects you when you are young, cutting off your life, you have nothing to do, because you have not paid enough.
And it does not matter if all this complicates your existence, if apart from everything previously mentioned, drastically reduces the chances of owning your own life.
Many people they see impossible something as simple as forming a family, not only because of fears about their physical problems, but because personal or family relationships do not usually come to fruition. Not everyone accepts, much less learn to live with a sick person. The failures of a couple, work, family … or simply feel like a failure as a person for not being able to do what your body asks or what your heart sends you, not only cause depressions, but all this leads to feel destroyed and many people have decided to end their suffering. These people deserve to be treated with the same rights as any person, because they are people, and only for that they have the right to have a decent life, have the right to smile, to enjoy life and family, to be understood and accepted, to feel valued and respected. To feel support from doctors and public institutions. They have the right to feed themselves and live under a roof that they can afford.