He is always tired and hurt all the time. Patrick Schutz Neuchatel fibromyalgia – an invisible condition is not recognized by disability insurance.
The pain, the pain, the pain simply Patrick Schuts (41) Neuchatel always feels that he has the flu – he has no fever, fatigue, but with a great advantage. He would like to stay in bed all day and spend some time there. “Every part of my body hurts, hopefully not all at once,” he did – “The Illustrated,” he told the magazine
Patrick Schutz and his partner have a three-year-old daughter, Naya.
Even if you play with her for only 20 minutes, the computer is off during the day. “When I sleep, then wake up, I am as tired as I have experienced. “He missed a lot of friends who think he’s fake. At night, you can not go with them before going to bed 19 hours to relax.
The diagnosis of suffering that a year ago revealed: Fibromyalgia. It is estimated that 400,000 people are affected in Switzerland. The problem: Fibromyalgia is not recognized by disability insurance (IV). There is no scientific evidence: there is no evidence that it is found in the blood and x-rays. Hundreds of symptoms characterize fibromyalgia. It is determined by the exclusion of other and proven diseases: sweet spots that are generally used.
If eleven or more than 18 (weaknesses) increase pain, suspicion of fibromyalgia is present. These diagnostic points are near tendinomotor approach. The cause of the disease is not known and can not be limited by medical measures.
Patrick protection must take many medications: analgesics, antidepressants, vitamins, medicines to protect the stomach and falls against sensitive and dry eyes. “It’s an invisible suffering,” Schutz said. She wants as many as possible to know about her, that she has created a site for which fibromyalgia reached the consciousness of the population.
Patrick has been unemployed for two years and lives in welfare. If the IV is at least partially recognizing the suffering, it would have been helped. So they expect financial support because of their depression and chronic fatigue. Their greatest hope is a popular initiative that has been launched and requires the recognition of fibromyalgia as a disease.
Naya plays with her daughter, but after 20 minutes, her energy runs out.
Patrick is lying on a mat to relieve pain.
Patrick’s relationship with partner Sylvie has also become difficult. There are no ordinary television songs, because he sleeps early. Naya is surprised that dad go to bed in it. Patrick Schutz know how long he can endure his condition: “I am only 41 years old and I live in the body of an old man! ”
Patrick suspects that even traumatic experiences could be triggered in the past. At age 17, he was present when his father hit a man with a stone in front of his eyes.
Patrick is no longer in contact with him. The birth of his daughter was so bad: almost the mother and child had died. Patrick: “These events shook me deeply. ”
He would like to do something with his wife and daughter, but his suffering and the little money he does not receive reality. Share wish of this article.